http://www.youtube.com/watch?v=NdugznakBGo

Here is a link to a You Tube video I created. I was considering making a series of these with small segments of information on KS and HH. Hopefully I can get to interviews with KS specialists as well which might be interesting.

Any feedback on this, positive or negative, would be appreciated.

Neil Smith.
August 2009.

The BBC documentary department is planning to produce a documentary on Kallmann syndrome.

While still at the idea stage they are after any input from any interested people with KS or HH who wishes to take part in person or just provide ideas for background information or content.

A previous documentary did not fully explore a lot of the aspects of having KS. In an attempt to avoid the same thing happening again they are keen to hear from as many people as possible to get a good general idea.

I have already mentioned any potential programme has to be more

If you live in the UK, and in particular England you are exempt from paying prescription charges for the medications taken for Kallmann syndrome and Hypogonadotrophic Hypogonadism.

Since the medications we take are required life long we do not have to pay the prescription charge each time we pick up our medication.

Ask your pharmacy for a copy of the “Help with health costs” booklet (HC11). It can also be downloaded from the Department of Health website at:

www.dh.gov.uk

Following on from the meeting in the UK there is a meeting scheduled to take place in Boston, USA on October 24th & 25th 2008.

The meeting is a good opportunity for people with KS or HH to meet other people with the same condtion and to talk to specialists from Boston General Hospital, one of the world leading hospitals into research into Kallmann syndrome.

More information on this event will follow.

Information on fertility options that may be available to some people with KS / HH.

A test news article, to appear on the news page.

Test content for the blog section, which will eventually be renamed News.

An endocrinologist is a doctor who specialises in diseases of the endocrine glands, parts of the body which are responsible for producing hormones. Your body has several different endocrine glands, but the important ones as far as Kallmann's syndrome is concerned are shown in Figure 1.

Kallmann's syndrome has one key symptom that sets it apart from other forms of hypogonadotrophic hypogonadism; the lack of sense of smell.

The absence of the sense of smell (anosmia), or a vastly reduced sense of smell (hyposmia) could act as marker that can lead to a diagnosis of Kallmann’s syndrome. Reduced sense of smell can happen on its own for a number of other reasons but in conjunction with delayed puberty might lead a doctor to suspect a case of Kallmann’s syndrome.

The sense of smell can easily be tested for by a combination of two simple tests.