Work in progress:

People with un-diagnosed KS or HH, or those people who withold treatment for any reason my be at an increased risk of developing osteoporosis at any stage of life.

Once hormone replacement therapy is started the risk is greatly reduced.

However a DEXA or bone density scan my be required at regular intervals to check the bone density.

Specialists have suggested that a minimum interval of every 5 years for those patients on regular treatment and every 3 years or even yearly for those already at risk or have gone through a period of time without hormone treatment.

For those people at increased risk there are medications available that can be taken alongside the hormone replacement therapy to reduce the risk.